Hello all!! Apologies for the lack of recent information but the last 3 weeks have been mega busy!!
It hasn't all been doom and gloom as we have had some wonderful friends and family come to visit from Scotland, but it has been a particularly rough couple of weeks for poor Hubby.
The new chemo pills have been reacting with the area in Hubby's throat where he had the radiotherapy causing something called radiation recall, which caused Hubby a lot of pain whenever he tried to eat or drink.
This got worse to the point where Hubby was living on boiled eggs and miso soup and, after calling our oncologist for advice, he ended up in hospital for 3 nights last week getting fluids and a blood transfusion :-(
While he was there they also did an endoscopy to make sure the pain in his throat was not being caused by new tumours, and hallelujah! For once we got some good news and they were able to confirm that it was definitely caused by the radiation.
He seemed better when he came out and was managing to eat a little more each day until Monday when his appetite dropped off again and he was in a lot of pain. He has been prescribed an appetite stimulant but that wont kick in for a couple of weeks.
We discussed this with the oncologist when we saw him today and we have been referred to a company that deals with at home IV nutrition to try and build him up as he is incredibly weak right now, but we are not sure if he can eat if he is taking the IV nutrition which seems like it might not really help in the long run so we have a few questions before we agree to this treatment.
Based on his blood counts last week and how weak he was looking today we were unsure if he would get the planned chemo but surprisingly his blood counts were all good today and the oncologist was happy to proceed, but has told Hubby to stay off the additional chemo pills until we see him again in 3 weeks.
Hubby seems to have taken today's treatment quite well and is dosing happily in the chair next to me. Back in tomorrow for more hydration, then fingers crossed we will have a more peaceful cycle this time round!!
I'll keep ya posted!! xxx
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