Hello friends. I apologize for the lack of updates, but the news has not been good and I have not had the heart to write about it.
A recent PET scan showed that sadly the latest chemo was having no effect and that all the tumours had grown again, so last week, in consultation with the oncologist, my brave hubby decided to stop chemo and begin hospice care. A horrific decision to have to make, but it is the right one and now we can concentrate on keeping him comfortable and hopefully squeeze a little fun in before the end.
No one can tell us how long he has left, but his health is visibly declining and we know that we are looking at weeks rather than months.
The hospice care will be done in the home as much as possible, and I am delighted that he will be able to remain in the comfort of his own home and that I will be able to continue to care for him.
The hospice people have mostly been wonderful so far, and the doctors and nurses have been in contact daily while we adjust his medications to get him and keep him comfortable, and he even had a massage from one of the hospice volunteers today!
Christmas was a toughie, but our amazing friends did their best to make it special and hand delivered me a rather yummy Christmas plate so that I didn't miss out on my festive dinner! It was hard to know what to get him for presents, but I figured I couldn't go wrong with light hearted movies so we have some Muppets movies, Despicable Me 2, Elf, and the original Star Wars trilogy on Blu Ray to look forward to over the next few days, along with some 3D spacey geeky nonsense :-)
I know a lot of people will want to come and visit Hubby but he gets very tired very easily so I'm afraid there may not be many opportunities for visits. Please text or email me, or text Peter, before visiting to see if he is fit, and be aware that any scheduled visits may have to be cut short or cancelled at short notice depending on how his day has been.
Also, be aware that if you are sending him texts it is probably me that is reading them and while you may not always get a reply I am passing on your messages.
Well, that pretty much covers it. I will keep you posted on any changes in Hubby's condition, and hopefully we'll manage to have some fun updates too!
Laters ..... x
I don't know weather to cry or scream or both or neither or what.
ReplyDeleteI know the feeling!
DeleteGosh Andrea. This is extremely sad news to learn. I have to admit I'm lost for words.
ReplyDeleteI'm guessing you are back in Scotland?
This is awfull for you, I wish there was something I could do, to take away this 'thing' which Peter has got... but there isn't and I don't. I am truely very sorry that Peter, you & your family are having to go through this. Peter's parents must be suffering unbearably. To lose a son or daughter must be the worst thing ever! And it must have taken you great strength to write this latest blog.
Please tell Peter we're thinking of him. Tell him, we'll still think of him after. Maybe not everyday for some of him more distant friends, but certainly he'll live on in our thoughts as something reminds us of him, from time to time
Please pass on our best wishes and give him a hug from me.
David
Thanks David - it is an awful time, but a time to be gotten through with as much love and fun and smiles as we can find.
DeleteNo, we are still in California. Peter chose to have his treatment over here as this is where our life is now, and also the sunshine!
I will pass on your best wishes
Andrea, We are praying and thinking good thoughts for you both. We are here for you - please let us know if there is anything we can do. Curtis & Amy
ReplyDeleteThanks guys
DeleteThere just arent words that seem enough :( really sorry for you both, he fought a good fight and with your brilliantly positvie attitude I am sure you will come up with some original and wacky things to make the coming days as fun and memorable as best you can . Thinking of you both. Love from Scotland Xx
ReplyDeleteThanks hon! x
DeleteHi Andrea,
ReplyDeleteWe are very sorry to hear the sad news . I know how tough it is for you.
You are in our prayers and thoughts.
We are Peter's colleagues from Scotland.
Sanjay and Suman
Andrea, I do not know you or Peter. I keep up with your messages on Kool lemon whatever group we are in. I also am fighting this stupid disease. My heart goes out to you though. I am on the other side of this and my hubby is in your spot. I can't imagine what you are going through right now. Try and enjoy him as much as possible. You are in my thoughts and prayers....Andrea from TN
ReplyDeleteThank you so much - it is very tough whichever side of the fight you are on. Love and thoughts are with you and your hubby too
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